Friday, June 28, 2013
Wednesday, June 26, 2013
Wednesday, June 19, 2013
I have taken a very long break, but I have not disappeared. I know my page has gone missing from MTHFRsupport.com, but they have promised to get it back up as soon as they can. I'm working on getting my own website up and running. I have some kinks to work out so I'm not sure when that will be ready. I've also been doing a writing project on the side and will share that with you soon. I've been expanding my horizons with social media and recently opened a Twitter account for those who are unaware: https://twitter.com/SurvivingMTHFR
I hope everyone who reads my blog finds the information useful. I really hope I am helping others with MTHFR and raising awareness. Thank you for reading!
Tuesday, May 28, 2013
I am a Pulmonary Embolism survivor. One in three people will die from these deadly clots. Once you develop a clot you are more likely to develop more in the future. Know your family history and test for genetic mutations. My whole family recently did testing through 23andme.com and found out my mother, father and both of my brothers all have a variation of MTHFR. Be aware of your risks and find out what measures you can take to prevent blood clots in your future.
Learn more about blood clots (re-posted from Forever Deborah Facebook page): http://www.washingtonpost.com/national/health-science/blood-clots-can-be-deadly-but-they-are-often-preventable-and-treatable/2013/05/24/53d1c38a-8a78-11e2-98d9-3012c1cd8d1e_story.html
Follow this lovely lady's page. Her twin sister passed from a Pulmonary Embolism and she has dedicated her time to raising awareness. She posts a "clot fact of the day": https://www.facebook.com/ForeverDeborah?fref=ts
Friday, May 3, 2013
Artichoke Egg Scramble with a side of bacon
Note: This is a gluten-free and dairy-free meal!
What you'll need:
- 4 eggs
- 1 - 14 oz can of artichokes (used Progresso brand)
- 1 - handful of shredded cheese, or dairy free cheese alternative (Daiya mozzarella used)
- A dash of Tony Chachere (optional)
Follow me on Pinterest: http://pinterest.com/aprildenna/gluten-freedairy-free-recipes/
Thursday, May 2, 2013
After my ER fiasco last week I've been incredibly exhausted. I can't seem to find the time to post as much as I would like. I hope my readers can forgive me. I'm still going to doctors appointments and trying to find answers to why I'm still short of breath. I'm falling behind on my emails and I haven't been able to work on new blogs. I'm hoping I can catch up soon. Be patient with me!
Thursday, April 25, 2013
I had a horrible and humiliating emergency room experience today. I've been having shortness of breath, chest pain and a cough for 2 days. I saw my primary doctor yesterday and he told me what he guessed it was, his suspicion was upper respiratory infection or bronchitis, but he could not rule out a Pulmonary Embolism without a CT scan. He told me if it got worse then I should go to the ER. I did as he said and this morning I went to the ER. I couldn't catch my breath from the time I woke up. My husband was insistent on taking me to the ER and I knew I didn't feel right. Normally if I say I'm having shortness of breath, chest pain, and I have a history of Pulmonary Embolism they listen to me. They took me straight back, but the first thing they did was hand me an anti-anxiety medication. They said "We'll see if this helps your breathing." Guess what, it didn't. I wasn't making it up. I didn't decide when I woke up this morning that I would go give the nurses in the ER a hard time today, I woke up and I couldn't breathe. They ordered blood work, looking for elevated d-dimer, and a chest x-ray. The PA came to talk to me and gave this long legal spill about how they are not going to give me a CT scan because if I need a lung transplant in 30 years I could come back and sue the hospital. He also told me that by looking at the oxygen rate in my blood and my EKG he could deduce that I did not have a Pulmonary Embolism, BUT could not look me in the eyes and guarantee that I did not have one. I told him that my oxygen rate was 98% and my EKG came back good when I was admitted to the ICU. He dismisses what I had to say, then proceeds to talk about my "history of panic attacks" and tries to shift the blame. Really? I just told him I haven't been an anti-depressant in 3 years and I can't remember the last time I took Xanax (my emergency only medication). I asked him "So, you're saying, even if I request the CT scan you will not do it", "No, we won't. Liability, lawsuits, blah, blah, blah", "So why am I out of breath?", "I don't know." When he was done with his spill I let him know I was not happy about being released without an answer. He came back a few minutes later to tell me the CT scan had been ordered by the higher authority on duty. All tests came back negative. Everything looked fine. I was discharged with no answers. Only a prescription for ibprofen, cough medicine and an inhaler. Basically told to rest and hope it goes away. They told me to schedule a follow up with my primary. Luckily I already have appointments with the Hematologist and Pulmonologist in the next 2 weeks.
I'm telling this whole story because no one should just accept what doctors have to say. It's ok to question it, it's ok to state your opinion and it's ok to argue. It is YOUR health. While they may have the best intentions they don't know your body like you do. If you know something is wrong make sure you're getting the correct treatment. Don't let someone hand you anxiety medicine in hopes of shutting you up and sending you out the door! I'm furious about this whole experience, as you can probably tell. I don't want to see others suffer merely because of a doctor's neglect, arrogance, or stubbornness to go "by the book". You're not going to find me in any of your books. I'm going to make you rewrite them all!