Saturday, April 18, 2015

Week One

It's been such a long time since I wrote a blog and I have a million ideas running around in my head. Let's start simple. Let's just start from the beginning...

I'm April and I started this blog to help people diagnosed with MTHFR. My original aim was toward pregnant women with MTHFR. Unfortunately it has become emotionally draining to talk with women who wish to become pregnant since I came to the decision I would stop having children myself. It was an incredibly tough decision, but for the sake of my health the decision was made.

I have thought over the years that I've been away how I could expand on my blog and my outreach. The name of my blog is "Surviving MTHFR". I've been surviving, but just barely. When I stopped blogging my health took a down hill dive. I had recurrent bronchitis every few months. I would have bronchitis, followed by a yeast infection, followed by the flu, followed by another yeast or bacterial infection. It was never ending. My immune system was shot. As soon as I was getting over one illness I would get sick again. I never felt well. This this also took a toll on my mental well being. I got very down and depressed because I was always sick and never saw the end in sight. I couldn't even function like a normal human being. I couldn't clean my house. I was exhausted just running to the store. I was fatigued, had headaches, constant allergies, couldn't sleep, my skin was dry, my hair falling out, I was freezing cold and couldn't warm up, my muscles seized up and wouldn't release. I had all I could take. I was always sick and in pain.

Depressed, stressed out, and in pain I tried a functional medicine doctor recommended by my chiropractor. This doctor looked at me and said "I can tell you're tired of being sick and in pain". She just read my mind. I was dismissed by every doctor I had seen for years. They all look at me with the most confused look on their face and say "I don't know what wrong with you" or "Lose weight and you'll feel better". Then I'm handed some new prescription and hurried out the door. However, this new doctor told me she knew something was wrong and she said "We'll figure this out". We'll figure this out! You mean one day I will feel better? There truly is a light at the end of the tunnel? Hallelujah!

First off we started with blood work. This showed I had Candida Overgrowth, Estrogen Dominance and Hypothyroidism. Along with low iron and low zinc. I started treatment last week.

●Diflucan for one month and a low amylrose diet for the Candida Overgrowth. 
●Westhroid for the Hypothyroid.

Week one has consisted of adding Diflucan and Westhroid. Bioidentical Progesterone for Estrogen Dominance is being reviewed by my Hematologist since I have a history of Pulmonary Embolism. Once approved it can only be used cycle days 14 through 28 and I'm waiting on a shipment with zinc and iron.

How do I feel? Much better than last week! I've fully recovered from the sinus infection and bronchitis I had last week. I'm feeling a bit tired and I think it's from the Diflucan and the Candida dying off. I was warned I could feel worse before I feel better. I'm having positive side effects as well, which include: sleeping very well, being a lot less anxious, muscle spasms improving, losing 5lbs and I'm not freezing cold every night. You have no idea how much it effects your life not being able to regulate your body temperature so this is a huge positive for me.

I'm feeling very hopeful about my treatments. It's important to have hope for the future, especially when it involves your health. I've made many changes over the years and I'll go back and explain a few at a later date. I'll be discussing diet in future blogs since I've gone gluten free, dairy free and low sugar. I'll also give some insight on what supplements have been helping me most recently. My plan is to give weekly updates on my new treatments, but bear with me if I miss a week. I need to get used to blogging again. Stay tuned.

Friday, February 13, 2015

Back to Blogging?

I've been gone for quite a while. I've gone through quite a few changes. I had to prioritize my life and blogging was not number one. I apologize to those who were looking to me for answers. I'm afraid I don't have them all. I'm just very good at Googling and cross-referencing. I find new discoveries exciting, but sometimes I find them overwhelming. New and overwhelming discoveries have surfaced involving my health. I needed to devote time and effort into getting my health restored because I was too fatigued and down with depression to blog.

Since my disappearance I have adopted a gluten free and dairy free lifestyle. I've been gluten free for 2 years now. I could probably write an entire blog on the health issues it has resolved. I made the decision to stay away from gluten and dairy just in time for a Hashimoto's diagnosis. I was unable to continue treatment with the chiropractor who diagnosed me. I have since moved 4,000 miles away which has involved starting my search for better health all over again. Six months ago I was diagnosed with sleep apnea. I've been sleeping with a CPAP every night. It slightly improved my fatigue issues, but seemed to open the door to other issues. I'm currently seeing a new chiropractor who is now suspicious of Cushing Syndrome. I'm on the search for a new doctor. A more holistic, naturopath type of doctor. I've traveled so far, but found myself on too many pharmaceuticals and too many questions. I suppose this is the start of a whole new journey.

Thursday, December 19, 2013

Apology

I have to apologize to anyone reading my blog and sending me emails. I have not answered emails in 3 months. I do not know when I will be able to start responding. I have taken an unexpected break from my blog and email due to health and personal issues. I do not know when or if I will return to blogging. Apologies to all.

Friday, June 28, 2013

The Healthy Elephant - MTHFR Series

Check out the series of articles about MTHFR on http://thehealthyelephant.com/. I met the owner of this website on Twitter and she asked me if I wanted to be a guest writer. The first three articles are written by Laurie. I wrote the last article on Folic Acid vs. L-methylfolate vs. Folate. This is one of the projects I've been working on. I hope you enjoy!


Is MTHFR a bad word?







Get off the fast track to disease by doing this….

Wednesday, June 26, 2013

NeevoDHA: New Formula

I have good news for people taking, or considering taking NeevoDHA prenatal. They have changed their formula so that it no longer contains Folic Acid or B6 as Pyridoxine Hydrochloride! Now it contains L-methylfolate and B6 as Pyridoxal 5 Phosphate. This was many people's hesitation to trying NeevoDHA. This is now the best prescription prenatal that you could ask your doctor for.

http://www.neevodha.com/wp-content/uploads/package_insert.pdf


Wednesday, June 19, 2013

25,000 Page Views!

I started this blog April 17th, 2012. I have received 25,000 page views in just over a year! This all started as a pregnancy blog, but I had my baby almost a year ago. I've been trying to expand the subjects I write about while still keeping the focus on MTHFR. I want to share more about my personal journey with MTHFR. You've read about my pregnancy, and my experience recovering from blood clots. I'm looking at writing about the new changes in my diet and using essential oils.

I have taken a very long break, but I have not disappeared. I know my page has gone missing from MTHFRsupport.com, but they have promised to get it back up as soon as they can. I'm working on getting my own website up and running. I have some kinks to work out so I'm not sure when that will be ready. I've also been doing a writing project on the side and will share that with you soon. I've been expanding my horizons with social media and recently opened a Twitter account for those who are unaware: https://twitter.com/SurvivingMTHFR

I hope everyone who reads my blog finds the information useful. I really hope I am helping others with MTHFR and raising awareness. Thank you for reading!

--April

Tuesday, May 28, 2013

Two Years Clot Free!

Today is a very emotional day for me. Two years ago on this day I was in an ambulance being rushed to the hospital. I was 27 years old with multiple, massive blood clots in both of my lungs. Read my full story here:

http://survivingmthfr.blogspot.com/2012/05/pulmonary-embolism-survivor-one-year_27.html


I am a Pulmonary Embolism survivor. One in three people will die from these deadly clots. Once you develop a clot you are more likely to develop more in the future. Know your family history and test for genetic mutations. My whole family recently did testing through 23andme.com and found out my mother, father and both of my brothers all have a variation of MTHFR. Be aware of your risks and find out what measures you can take to prevent blood clots in your future.


Learn more about blood clots (re-posted from Forever Deborah Facebook page): http://www.washingtonpost.com/national/health-science/blood-clots-can-be-deadly-but-they-are-often-preventable-and-treatable/2013/05/24/53d1c38a-8a78-11e2-98d9-3012c1cd8d1e_story.html


Follow this lovely lady's page. Her twin sister passed from a Pulmonary Embolism and she has dedicated her time to raising awareness. She posts a "clot fact of the day": https://www.facebook.com/ForeverDeborah?fref=ts


Have you experienced clots and feel like no one understands what you're going through? Here is a good group that will understand all the ups and downs that come with recovering from blood clots: https://www.facebook.com/groups/Pembolism/